Questions That Need Answers Regarding Celiac Disease
April 19, 2008 | Articles, Celiac Disease | | by Nadine Grzeskowiak |
These are some of the many questions I am interested in exploring myself, or perhaps YOU know the answer. I encourage you to THINK and to ASK questions.
- Why isn’t there one study in the whole country on the incidence of Celiac Disease in the Native American population? I asked this question, a search was completed that came back with no published research data and no current studies in progress. How can this be?
- I have offered to give presentations or inservices to every physician group I know. Not one physician group has taken me up on my offer. WHY NOT?
- How come in 2004 the NIH launched a Celiac Disease Awareness Campaign and no one heard about it? Not one healthcare professional I have spoken to knows about this campaign OR Celiac Disease.
- Why are physicians so sure that even if they DID diagnose Celiac Disease, the diet is SO hard, no one would follow it? I have had this conversation many times, with many doctors. One even professed to have tried the diet and failed, (See ’stupid things doctors say’).
- Are Asian people at risk for Celiac Disease, or not?
- If the rate of Celiac Disease in Sub-Sahara Africa is 1:65, why are we feeding the starving children wheat?
- Is anyone going to start telling African-Americans that they have a higher risk for Celiac Disease?
- Why are the pharmaceuticals spending MILLIONS of dollars to develop a PILL for Celiac Disease? The treatment is a diet change.
- How DID an entire disease process, known to the rest of the world, get hidden by the United States for over 120 years?
- Why is the media SO slow to pick up this humiliating story and give it the coverage it deserves?
- To the doctors: How many patients in your practice have you diagnosed with Celiac Disease?
- To the nurses: I challenge you to be patient advocates and learn the symptoms of Celiac Disease.