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Thoughts on Celiac Disease EP054

In 11 years as the Gluten Free RN, Nadine has done an incredible amount of research on celiac disease and delivered more than 2,000 lectures. No question she is frustrated to see misinformation continue to make its way onto celiac support sites and Facebook groups. How does the average person sift through all the material that’s out there—material that may be influenced by corporations and pharmaceutical companies with a vested interest in the way celiac disease is perceived—to get to the most accurate information?

Just in time for the holidays, the Gluten Free RN is sharing her wish list around the direction of celiac disease and non-celiac gluten sensitivity in the next ten years. She discusses the need for a global mass screening, explaining how celiac disease meets the World Health Organization’s criteria. She covers the reasons why pharmaceutical companies have no place in celiac research as well as the bad publicity the gluten-free community receives in the media.

Nadine speaks to the grievous lack of education about celiac disease among healthcare providers and shares her hope for a cultural shift to support people on a gluten-free diet, explaining the role nurses can play in ending the needless suffering. She talks about why a gluten-free diet is NOT dangerous and how to make the best food choices based on your lifestyle and current situation. Listen in and get empowered to accept responsibility for your health!

What’s Discussed: 

The need for a global mass screening

  • Celiac disease meets WHO criteria
  • 30-50% of population carries gene

Why pharmaceutical companies should not be involved in celiac research

  • Diet change resolves symptoms
  • Pharmaceutical involvement gives false hope for cure

The misinformation about celiac disease in the media

  • Misrepresentation in recent episode of Freakonomics Radio

The need to educate healthcare providers around celiac disease

Nadine’s call for support of people on a gluten-free diet

  • Don’t assume intentionally being difficult

The unique position of nurses to use their influence

  • Prevent needless suffering with understanding of celiac disease

Why you must accept responsibility for your own health

  • Take advantage of available resources
  • Find practitioners open to other modalities

How to avoid processed foods

  • Focus on raw, whole foods
  • Choose fresh fruits, vegetables
  • Don’t fall victim to convenience marketing
  • Use community, intuition to make decisions

Why a gluten-free diet is NOT dangerous

  • Nadine restored her health by eliminating grains
  • Unethical to suggest that celiac patient go off gluten-free diet

Resources:

Freakonomics Radio: The Demonization of Gluten

2004 NIH Consensus Statement on Celiac Disease

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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Alex Michaels from LPI on Vitamin C EP053

You know that vitamin C is good for you. It is necessary for the growth, development and repair of all your body tissues, and it plays a role in the healthy functioning of your immune system. But evidence shows that the RDA—90mg for men and 75mg for women—may be woefully inadequate. And if you are suffering from certain types of cancer or sepsis, vitamin C may be the key to recovery.

 The Gluten Free RN is joined by vitamin C researcher Alex Michaels from the Linus Pauling Institute at Oregon State University to discuss the latest developments in vitamin C, explaining how intravenous vitamin C works to kill certain cancer cells and reverses the organ failure associated with sepsis. He also covers the difference between vitamin C inadequacy and vitamin C deficiency and the debilitating symptoms of scurvy.

 Nadine and Alex speak to the best food sources of vitamin C and how it impacts other vitamins and minerals like iron and copper. Alex offers his advice around how much vitamin C you should get on a daily basis and explains why synthetic and natural vitamin C are identical. Learn about the LPI mission to determine the optimal ranges of micronutrients and phytochemicals you should be getting on a daily basis and how you can benefit from their research!

What’s Discussed:

Micronutrients vs. macronutrients

  • Micronutrients are vitamins, essential minerals needed in small amounts (milligrams or micrograms/day)
  • Macronutrients include fats, carbs and proteins (grams/day)
  • Phytochemicals come from plants, affect health but not essential nutrients

 The difference between intravenous and oral vitamin C

  • Intravenous bypasses GI system, high concentration in bloodstream (up to 100 grams)
  • Body can only absorb certain amount of oral vitamin C, inflammation may prevent absorption

 Vitamin C’s resurgence as a cancer therapy

  • High levels of intravenous vitamin C can covert oxygen to hydrogen peroxide
  • Hydrogen peroxide floods and kills some cancer cells (e.g.: pancreatic tumors)

 Vitamin C’s role in the treatment of sepsis

  • Reverses organ failure, decreases inflammation
  • May restore vitamin C to normal levels, protect from negative effects of iron

 The availability of intravenous vitamin C

  • Difficult to obtain, naturopaths usually have dedicated supplier
  • More readily available in Australia, New Zealand

 The fundamentals of scurvy

  • Defined as deficiency in vitamin C
  • Symptoms include bleeding gums, corkscrew hair growth, open wounds, malaise and low energy
  • Very rare in western world, would have to go without any fruits or vegetables for months
  • May have vitamin C inadequacy without any outward signs of problem

 The best food sources of vitamin C

  • Chili peppers
  • Tropical fruits (papayas, Kakadu plum, camu camu)

 Factors that are known to denigrate vitamin C

  • Heat, light and air
  • Mechanical disruption (i.e.: juicer)
  • Basic pH (anything above 7)
  • Enzymatic factors
  • Iron, copper

 How vitamin C impacts other vitamins and minerals

  • Enhances iron absorption, some must be careful of iron overload
  • Synthetic vitamin C may deplete copper concentration

 Alex’s take on the appropriate daily intake of vitamin C

  • 400 mg/day recommended
  • RDA much too low

Resources:

Linus Pauling Institute

Micronutrient Information Center

LPI on Facebook

LPI on Twitter

LPI on LinkedIn

LPI on Pinterest

Biochemical, Physiological, and Molecular Aspects of Human Nutrition by Martha H. Stipanuk PhD and Marie A. Caudill

Cancer and Vitamin C by Ewan Cameron and Linus Pauling

Dr. Paul Marik on NPR

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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Men and Celiac Disease EP035

When boys are hurt, we tell them to ‘rub some dirt on it’ and get back in the game. So it comes as no surprise that men have a tough time admitting weakness, especially to something as innocuous as a slice of bread. Perhaps this explains why celiac disease is considered a women’s issue, when in reality the male-to-female ratio is closer to 1:1.

Today the Gluten Free RN discusses the large numbers of men in the US who go undiagnosed or misdiagnosed, sharing several anecdotes of patients whose symptoms resolved on a gluten-free diet. She covers the particular social challenges for men with celiac disease, the laundry list of symptoms men may encounter, and the specifics of nutrition she recommends for gluten-sensitive patients.

Through it may be difficult to give up pizza and beer with the guys, it is worth the effort to go from sick and struggling to happy and healthy. Listen in and learn how to make going gluten-free simple and easy, even for men with limited culinary skills. Add bacon fat to your greens AND regain your abs with advice from the Gluten Free RN!

What’s Discussed:

The myth that men are less likely to suffer from celiac disease

  • 3 women diagnosed for every man
  • Actual ratio of men to women is 1:1
  • Huge numbers of undiagnosed celiac patients in US

The addictive nature of gluten

  • Morphine-like effect
  • Difficult to give up pizza, beer

Case study of man diagnosed with pancreatitis

  • Athletic entrepreneur in 40’s
  • Tested positive for celiac disease
  • Adopted gluten-free diet
  • Pancreatitis resolved
  • Fatigue and throat-clearing went away

Common symptoms of celiac disease in men

  • Fatigue
  • Thyroid issues
  • Anemia
  • Osteoporosis
  • Bowel issues
  • Difficulty swallowing
  • Chronic cough
  • GERD
  • Gastritis
  • Hemorrhoids
  • Gas
  • Bloating
  • Diarrhea
  • Constipation
  • Irritability
  • IBS
  • Urinary incontinence
  • IBH
  • Erectile dysfunction
  • Prostatitis
  • Prostate cancer
  • Facial ticks

Why men with osteoporosis and anemia together should assume they have celiac disease

  • Review labs for red blood cell count
  • Check for hemoglobin and hematocrit in right range

Nadine’s patient with a climbing PSA (lab indicator of prostate cancer)

  • Patient had difficulty sleeping, snoring issues
  • Had to eat bread or cereal before coffee to avoid abdominal pain
  • Suffered from chronic belching, brittle nails
  • Adopted variation of Paleo diet, symptoms resolved

How Nadine’s doctor had a change of heart around celiac disease

  • Nicknamed her ‘Gluten Insufficiency Nurse’
  • Called to request consultation
  • Endoscopy report indicated he had celiac disease
  • Symptoms resolved on gluten-free diet
  • No longer needed Cialis

The lack of celiac understanding exhibited by healthcare practitioners in the US

Doug’s story

  • PA diagnosed with atypical Crohn’s
  • Three trips to ER with GI bleeding
  • Endured surgery to resect bowels
  • Followed Nadine’s instructions for gluten-free diet
  • No longer has Crohn’s, rectal bleeding
  • Feels significantly better

How gluten causes excessive gas, explosive diarrhea and constipation

  • Gluten can trigger paralysis of intestines
  • Normal BM with diet change

Nadine’s advice around nutrition for gluten sensitive patients

  • Super-good, high fat diet
  • Paleo, whole food diet is ideal
  • Incorporate meat, fish, eggs, fruits, vegetables, nuts and seeds
  • Eliminate all grains, legumes and processed foods
  • Replace starches with potatoes, rice
  • Make choices based on preference and nutritional value
  • Select fewer processed, more fresh foods
  • Don’t just replace gluten-containing foods with gluten-free version (processed = nutrient deficient)

The benefits of bacon

  • Can use bacon fat to sauté greens
  • Body uses fat to heal, keep brain and nervous system healthy, prevent neurological disorders

Why men may be more resistant to diet change

Nadine’s advice for men on eating fresh, gluten-free food

  • Find a few easy-to-prepare recipes you like
  • Use a Crock-Pot
  • Incorporate fruits and vegetables
  • ‘If it’s hard, you’re doing it wrong’

Why subsidized ingredients are found in countless products

  • Government pays food manufactures to incorporate
  • Wheat, corn, soy and peanuts in surprising foodstuffs like catsup, tuna

The social challenges for men with celiac disease

  • Don’t want to be perceived as needy, weak
  • Others may be unkind if express special dietary needs
  • Especially difficult if others cooking for you, at special events (e.g.: wedding)

How switching from vegan or vegetarian to Paleo has affected Nadine’s male patients

  • Realize healthy weight
  • Able to gain muscle mass
  • Pain issues resolve
  • Improved mood

Resources:

The Whole 30: The 30-Day Guide to Total Health and Food Freedom  by Melissa and Dallas Hartwig

Connect with Nadine: 

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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Go Gluten Free for Good EP052

How do you successfully transition to and maintain a 100% gluten-free diet for the rest of your life? The prospect of eliminating wheat, barley and rye from your diet may seem daunting, but it is possible to go gluten free for good—for the good of your family and your health!

The Gluten Free RN explains the addictive nature of gluten and what to expect during the detox process as you begin your gluten-free journey. She offers valuable advice around how to choose the best quality food products while avoiding potential sources of cross-contamination.

Nadine discusses the need for supplements that will help you heal faster and more completely, speaking to the vitamin levels you should monitor along the way. Listen and learn her best tips for navigating the grocery store and maintaining a positive attitude throughout the process of going gluten-free—for GOOD!

What’s Discussed: 

The addictive nature of gluten

  • Gliadin, gluten proteins bind to opioid receptors
  • Wheat, barley and rye are cheap and readily available

 What to expect during the detox process

  • Different for everyone
  • Consider elimination diet to reboot system
  • May feel worse before feel better
  • Headaches, low energy and feeling hungry are common

 Why you shouldn’t cheat on a gluten-free diet

  • Same autoimmune response, even if symptom-free

 Potential sources of cross-contamination

  • Processed foods
  • Unwashed fresh fruits, vegetables
  • Bulk bins
  • Restaurants
  • Own home (i.e.: cutting boards, hands, pets, utensils, appliances, etc.)

 Nadine’s rules around choosing quality food products

  • Five ingredients or less
  • Picture every ingredient
  • Certified gluten-free
  • 100% grain-free

 Why there is no such thing as cheap food

  • Pay for quick-fixes to treat symptoms

 The necessity of additional vitamins, supplements

  • Helps heal faster, more completely
  • Use multivitamin, fish oil, pre- and probiotics
  • Check levels of D3, Zinc, B6 and B12
  • Liquid, chewables and capsules are easier to break down

 Nadine’s advice around navigating the grocery store

  • Plan menus in advance
  • Bring list of safe foods
  • Read labels carefully
  • Consider local co-ops, natural grocers and farmers markets

 Nadine’s best tips for going gluten-free

  • Concentrate on what you can eat
  • Accept more cooking, baking and meal planning
  • Find support group
  • Stay current on research, food labeling
  • Practice mindfulness, maintain positive attitude

Resources:

Whole30

Country Life Vitamins

Robb Wolf’s Paleo Food Matrix

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism