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Russia and Celiac Disease EP065

As stories about Russia continue to dominate the news cycle, you are probably familiar with the recent sanctions against the country, Vladimir Putin’s reelection, and even the expulsion of Russian diplomats from the EU and US. But what do you know about celiac disease in Russia?

The Gluten Free RN is taking a closer look at the limited information about celiac disease in Russia, giving us an overview of the country’s size and population and the likely number of celiac cases based on the global tendency. She discusses the thriving wheat production industry in Russia as well as the gluten-containing traditional Russian diet.

Nadine walks us through a presentation created by Dr. Elena Roslavtseva at the Scientific Center for Children’s Health in Moscow, sharing how the diagnoses of celiac disease changed from the 1970’s through the 2000’s, the inconsistencies with testing for celiac disease around the nation, and the challenges of maintaining a gluten-free diet in Russia. Listen in as the Gluten Free RN covers the Journal of Immunology Research’s overview of celiac disease in Russia, explaining why the reported frequency probably doesn’t reflect the true prevalence and the necessity of a mass screening.

What’s Discussed: 

General information about the country of Russia

  • Population of 144.3M
  • Dual nation state, 185 ethnic groups
  • Largest country by land mass

Russia’s thriving wheat production industry

  • Very high, exported to Middle East and Africa
  • Ban on genetically modified wheat

The first diagnoses of celiac disease in Russia

  • Late 1970’s—1980’s
  • Cases of severe malabsorption
  • No gluten-free foods available

How celiac diagnoses changed in the 2000’s

  • Diagnosed more often, well-known in most regions
  • Research done in many universities, med centers

The Eastern European countries that have done mass screenings

  • Romania, Slovakia, Slovenia, Estonia

Why the data around celiac disease in Russia is unreliable

  • Variation in how practitioners test for celiac disease
  • Belarus—HLA-typing not available in most cases
  • Latvia—mandatory screening for patients with IDDM and AIT

The problems associated with celiac disease in Russia

  • Unreliable data in absence of mass screening
  • Gluten-containing traditional Russian food

The overview presented in the Journal of Immunology Research

  • Diagnostic tools for celiac disease in Russia vary significantly
  • Reported frequency of 0.2-0.6%, but real rate unknown

Resources:

‘Coeliac Disease and Gluten Related Disorders in Russia and Former Soviet Republics’ by Dr. Elena Roslavtseva

‘Overview of Celiac Disease in Russia: Regional Data and Estimated Prevalence’ in the Journal of Immunology Research

‘Russia, Argentina and Canada Displace US, Europe in Global Wheat Trade’ in agriCENSUS

‘Russian Wheat Sales Expand Global Reach with Surge in Sudan’ in Bloomberg

‘Russia’s Wheat Industry: Implications for Australia’ from the Australian Export Grains Innovation Centre

‘Growing Importance of Russian Milling Wheat Worldwide’ from Solaris Commodities

‘How an Oil Giant (Russia) Came to Dominate Wheat’ in Bloomberg

‘Celiac Disease in Russia and the Former Soviet Republics’ in The Celiac Scene

Connect with Nadine:

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‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Heal

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Review of Colombia University Celiac Disease Conference 2018 EP064

When faced with new information, it’s important to consider the source. Stop for a moment and examine whether the material is coming from someone with YOUR best interests at heart. The Gluten Free RN has just returned from the Colombia University Celiac Disease Conference, and she is breaking down the information presented to determine what’s useful—and what might be tainted by the pharmaceutical or food industry agenda.

Nadine begins with a workshop led by General Mills that offered some questionable information about how grains are processed at their factories and a talk led by University of Chicago faculty on the topic of a gluten challenge. She also speaks to the differences between celiac management in the US and countries with universal healthcare like Italy and Australia.

Nadine covers new testing that detects gluten exposure in stool or urine and what that reveals about the systemic nature of gluten damage as well as her take on practitioners who perpetuate the myth that grains are necessary and nutritious. Listen in for the Gluten Free RN’s insight around pharmaceutical treatments for celiac disease and the danger in volunteering for studies backed by drug companies.

What’s Discussed:

The two programs available at Colombia’s 2018 conference

  • Clinical (nurses, RDs and laypeople)
  • International (doctors, scientists, industry and VC)

How celiac disease is managed in Italy

  • Presentation by Dr. Carolina Ciacci
  • Law mandates gluten-free options

Nadine’s frustration with the General Mills presentation

  • Major sponsor of conference
  • Claim to separate grains at factory

Nadine’s take on gluten-free Cheerios

  • Should be avoided, not truly gluten-free

Nadine’s confusion around Dr. Bana Jabri’s comments

  • Wouldn’t put ‘potential celiac patient’ on gluten-containing diet
  • Did not include patients with positive antibody test but negative biopsy

Why the biopsy for celiac disease is problematic

  • Only tests one foot into duodenum
  • GI tract is 30 feet in length

Nadine’s insight on a gluten-free challenge

  • No possible benefit for patient
  • Unnecessary, unethical

The systemic nature of gluten damage

  • New tests detect gluten exposure in stool, urine
  • Urine test indicates passage through every system

Nadine’s stance on pharmaceutical treatments for celiac disease

  • No pill or vaccine will treat or cure CD
  • Harmful to people in studies

The myth that grains are necessary and nutritious

  • Practitioners who perpetuate are ‘toeing company line’

Why it’s important to understand the source of your information

  • Should be untainted by pharmaceutical money, agenda

Australia’s requirements for gluten-free food

  • Standard of less than 3 ppm

Resources:

Celiac Symposium Program

Connect with Nadine:

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Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Heal

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Poland and Celiac Disease EP063

To pierogi or not to pierogi…

If you have celiac disease, there is no question that you should avoid anything made with flour or grains, no matter how delicious the dish may be. Although the Gluten Free RN has fond memories of her Polish grandmothers making traditional pastries, she contends that you don’t have to eat customary Polish food to celebrate your Polish heritage.

In preparation for her upcoming trip to Warsaw in July, Nadine is taking a closer look at celiac disease in Poland. She discusses a 2009 study assessing the prevalence of celiac disease in Polish children, highlighting the asymptomatic and oligosymptomatic nature of the disease and explaining her own false negative test. Listen in for the Gluten Free RN’s insight around preparing for a trip to Poland, including research on the available gluten-free food and adult beverages!

What’s Discussed:

Why Nadine is concerned about her upcoming trip to Poland

  • Flour, grains used in cooking and baking

Nadine’s Polish heritage

  • Fond memories of grandmothers making pierogi, pastries

The 2009 study of celiac disease in Poland

  • Assessed prevalence in children, only screened for IgA EmA, IgG EmA
  • 3,235 children in Bydgoszcz tested, 25 identified (seven with Marsh III)
  • Predominantly asymptomatic or oligosymptomatic

Nadine’s genetic predisposition for celiac disease

  • HLA-DQ2.5 homozygous

How Nadine is preparing for travel in Poland

  • Aware of Polish translations for gluten-free, celiac (bezglutenowe, trzewny)
  • Take ‘rescue food’ for emergencies

The prevalence of celiac disease in Poland

  • 1:100 (matches worldwide estimate)

The gluten-free alcoholic beverages available in Poland

  • Potato vodka, honey mead

Nadine’s caution against eating bread in Europe

  • Wheat, grain causes damage regardless of location

The overlap between autoimmune and celiac disease

  • CD is grossly unrecognized, underdiagnosed

Nadine’s suggested diet for celiac patients

  • Meat, fish and eggs
  • Nuts and seeds
  • Fruits and vegetables

Resources:

NIH Consensus Development Conference on Celiac Disease

‘Screening for Celiac Disease in Poland’ in the Medical Science Monitor

Gluten-Free Globetrotter Blog on Poland

Gluten-Free Travel in Poland—Coeliac Youth of Europe

Poland Travel Guide—Coeliac UK

‘Graves’ Disease, Celiac Disease and Liver Function Abnormalities in a Patient—Clinical Manifestation and Diagnostic Difficulties’ in ACTA Biochimica Polonica

‘Neuropsychiatric Symptoms and Celiac Disease’ in Neuropsychiatric Disease and Treatment

‘Evaluation of HLA-DQ2/DQ8 Genotype in Patients with Celiac Disease Hospitalised in 2012 at the Department of Paediatrics’ in Przeglad Gastroenterologiczny

For Visitors with Coeliac Disease—Polskie Stowarzyszenie Osob z Celiakia i na Diecie Bezglutenowej

Connect with Nadine:

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Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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The Irish and Celiac Disease EP062

The Irish are known for being lucky… But does that luck hold out when it comes to celiac disease?

The prevalence of celiac disease among the Iris is 1:100, about the same as the rest of the world. And if you are a redhead of Irish descent, there is a good chance that you are an HLA-DQ2 or HLA-DQ8 gene carrier.

Today, the Gluten Free RN explores Irish ancestry and celiac disease, discussing how the Potato Famine led to a change in diet for much of the surviving population. She walks us through a paper published by Irish College of General Practitioners explaining the clinical presentations and complications of celiac disease.

Nadine shares her experience running the Dublin marathon and the health consequences she suffered after touring the Guinness brewery. Listen in to understand the work of the Coeliac Society of Ireland and learn about the trends in celiac disease among the Irish.

What’s Discussed: 

Why red hair is associated with celiac disease

  • Tend to be HLA-DQ2 and/or HLA-DQ8 gene carriers

The prevalence of celiac disease in Irish Setters

  • Do much better on a gluten-free/Paleo diet

The Irish Potato Famine

  • Potato-based diet, little access to grains
  • Famine from 1845-1849
  • One million died, many emigrated

The myth that celiac disease is more prevalent in Europe than the US

  • 30-50% of the population carries HLA-DQ2, HLA-DQ8 gene

The myth that women are more susceptible to celiac disease

  • Statistics don’t support this belief

The Irish College of General Practitioners paper on celiac disease

  • Clinical presentations, complications of celiac disease
  • Conditions associated with increased prevalence

The prevalence of celiac disease in Ireland

  • 1:100 (matches rest of world)

The appropriate testing for celiac disease and NCGS

  • Blood test for total IgA/IgG, DGP and AGA

Nadine’s experience running the Dublin marathon in 1998

  • Extreme edema in lower extremities

The information provided by the Coeliac Society of Ireland

  • Health ramifications of undiagnosed CD
  • Average duration from symptoms to diagnosis (nine months)

Resources:

‘Gluten-Sensitive Enteropathy in a Family of Irish Setters’ in The Canadian Veterinary Journal

‘Diagnosis and Management of Adult Coeliac Disease’ in ICGP

Coeliac Society of Ireland

‘Prevalence and Incidence of Celiac Disease in Edinburgh and the Lothian Region of Scotland’ in Gastroenterology

‘Prevalence and Diagnosis’ by the Coeliac Society of Ireland

‘Coeliac Disease in Europe’ in Alimentary Pharmacology & Therapeutics

‘Escalation in the Amount of Adults Diagnosed with Coeliac Disease’ in Lifestyle Health

‘Gluten-Free Foods’ by the Food Safety Authority of Ireland

‘How Irish Diets of the Past Affect the Present’ in The Irish Times

‘Changes in Presentation of Celiac Disease in Ireland from the 1960s to 2015’ in Clinical Gastroenterology and Hepatology

‘Coeliac Disease: A Personal Perspective’ in Irish Health

‘Coeliac Disease: More Common Than You Think in Irish Health

‘Pathology and Management of Coeliac Disease’ by the Dublin Academic Medical Centre & UCD

Connect with Nadine:

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Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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The US Military and Celiac Disease EP061

It goes without saying that anyone who serves in the military needs to be healthy and strong—and that military leaders have an obligation to keep enlisted servicemen and women as safe and healthy as possible. So, it makes sense that people with food allergies (including celiac patients) are disqualified from military service, but it is less clear why celiac testing is not a part of the medical exam to qualify for enlistment.

Today, the Gluten Free RN addresses the issue of celiac disease in the military. She explains the challenges of preparing gluten-free food in a mess hall setting and describes the consequences for an active duty soldier who is found to have celiac disease.

Nadine shares a research study exploring celiac trends among active duty military as well as a case study around veterans and celiac disease. Listen in for insight on what’s behind the increased prevalence of celiac disease among military personnel and the confirmed association between celiac disease and other complex health issues.

What’s Discussed: 

Why celiac patients are disqualified from enlisting in any branch of service

  • Unable to provide safe food

What happens to military personnel who are found to have celiac disease

  • Will receive medical discharge

The US military policy around food allergies and intolerances

  • No accommodations made

Countries that allow celiac patients to serve

  • Israel, Finland and Scandinavia

The Mayo Clinic study of celiac trends among active duty military

  • Healthy worker population with medical diagnostic coding
  • Incidence of celiac disease increased five-fold from 1999-2008
  • Combination of increased suspicion and environmental factors

The challenge of preparing gluten-free food in a military setting

  • High risk of cross-contamination

A case study involving military veterans and celiac disease

  • Confirmed association between CD and other complex issues

The benefits of a gluten-free diet

  • Preventative for autoimmune disorders, nutritional deficiencies and cancer

Nadine’s argument for celiac testing prior to enlistment

  • Obligation to safety of servicemen/women

Resources:

Military Standards of Medical Fitness

‘The Incidence and Risk of Celiac Disease in a Healthy US Adult Population’ in the American Journal of Gastroenterology

‘Celiac Sprue Among US Military Veterans: Associated Disorders and Clinical Manifestations’  in Digestive Diseases and Sciences

‘Gluten-Free Soldier in Afghanistan’ in Gluten-Free Living

‘Medical Mix-Up Sidelines Army Sergeant’s Career’ in Military Times

Celiac Disease-Related Veterans Affairs Case

Connect with Nadine:

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Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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Hepatitis B Vaccine and Celiac Disease EP060

We get vaccinated to protect ourselves, to gain an immunity to a particular disease. But in the case of hepatitis B, celiac patients may come to find out that we are NOT immune—despite having done the right thing in getting a hepatitis B vaccination.

Today, the Gluten Free RN is walking us through the latest research around vaccination and celiac disease. She explores the fact that celiac patients are more likely to be non-responsive to HBV than the general population, explaining the fundamentals of hepatitis B and the two main theories as to why the vaccine doesn’t work for some celiac patients.

Nadine shares her take on immunizations, explaining why she is a proponent of an alternate vaccination schedule for infants who may be immunocompromised. Listen in and learn how to determine whether you are truly immune to hepatitis B and protect yourself from potentially life-threatening disease!

What’s Discussed: 

The basics of hepatitis B (HBV)

  • Viral infection that attacks liver
  • Transmitted through blood, body fluids

The prevalence of hepatitis B

  • 257M people infected
  • 887K deaths in 2015

The 2013 Italian study around celiac disease and the hepatitis B vaccine

  • Number of non-responders to vaccine higher in CD patients
  • May be genetic OR caused by gluten intake during vaccination

Nadine’s experience with vaccination as a child

  • Contracted mumps despite MMR

Nadine’s take on vaccination

  • Advocates for immunization to prevent disease
  • Giving babies multiple vaccines at once may not be best

The conclusion of a 2017 Italian study

  • Administer booster shots of hepatitis B vaccine as needed
  • Evaluate response to vaccine in newly diagnosed celiac patients
  • Revaccinate one year after adoption of gluten-free diet

The value of a hepatitis B titer

  • Confirms whether really immune
  • If not, test for celiac disease

Resources:

‘Hepatitis B Vaccine in Celiac Disease: Yesterday, Today and Tomorrow in the World Journal of Gastroenterology

‘Vaccinations in Celiac Disease’ in the Journal of Pediatric Gastroenterology and Nutrition

‘Immune Response to Vaccines in Children with Celiac Disease’ in the World Journal of Gastroenterology

‘Immune Response to Hepatitis B Vaccine in Patients with Celiac Disease: A Systematic Review and Met-Analysis’ in Human Vaccines and Immunotherapeutics

‘Early Vaccinations are Not Risk Factors for Celiac Disease’ in Pediatrics

‘Gluten Intake Interferes with the Humoral Immune Response to Recombinant Hepatitis B Vaccine in Patients with Celiac Disease’ in Pediatrics

‘Effect of Pentavac and Measles-Mumps-Rubella (MMR) Vaccination on the Intestine’ in Gut

‘Normal of Defective Immune Response to Hepatitis B Vaccine in Patients with Diabetes and Celiac Disease’ in Human Vaccines and Immunotherapeutics

Connect with Nadine:

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Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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Hypothyroid, Pulmonary Edema and Celiac Disease EP059


When the Gluten Free RN went on a gluten-free diet 11 years ago, her thyroid settled down and the associated symptoms and disorders—Graves’ disease, weight gain and hair loss—resolved.

But when Nadine was inadvertently hit with gluten two years ago, several of those symptoms returned, along with a few new ones. She was losing hair and gaining water weight again. On top of that, her sinuses were congested. She developed asthma, a rash on her lower right leg and a scary case of pulmonary edema (excess fluid in the lungs).

Hindsight being 20/20, Nadine realizes that her recent diagnosis of hypothyroidism is associated with that accidental gluten ingestion. Further study made it clear that there is a potential connection between her thyroid problems and pulmonary edema, as the leaky gut that comes with celiac disease can cause fluid shifts into body tissues.

Today the Gluten Free RN explores the links among celiac disease, thyroid disorders and pulmonary edema. She explains the function of the endocrine system, the symptoms associated with hypothyroidism, and the diet she recommends for patients with thyroid issues. Listen in for Nadine’s insight around how gluten affects the thyroid gland and why the resulting low sodium levels might trigger edema in celiac patients.

What’s Discussed: 

The function of the endocrine system

  • Glands in body that make hormones

The connection between celiac disease and thyroid disorders

  • Thyroid especially vulnerable to gluten protein in wheat, barley, rye and oats

Nadine’s symptoms of hypothyroidism

  • Lower extremity edema
  • Congested sinuses
  • Hair falling out
  • Pulmonary edema
  • Asthma
  • Rash on leg

How damp rash lotion resolved Nadine’s symptoms

  • Prescribed by acupuncturist in Chiang Mai
  • Rash cleared, could breathe easy
  • Symptoms returned within four weeks of return to US

Nadine’s thyroid-stimulating hormone (TSH) levels

  • Within normal limits despite thyroid issues
  • Practitioner declined to order thyroid panel

The relationship between thyroid issues and edema

  • Sodium = major electrolyte, maintains body’s pH
  • Hypothyroidism means low sodium levels
  • Leaky gut of celiac disease leads to fluid shifts (edema)

The research around thyroid disorders and celiac disease in Current Allergy and Asthma Reports

  • Association between CD and thyroid disorders well documented
  • Increased prevalence of autoimmune thyroiditis and Graves’ disease in celiac populations

The diet Nadine recommends for celiac patients with potential thyroid issues

  • Gluten-free, dairy-free
  • Whole food, Paleo

Why patients with unexplained pulmonary edema should be tested for celiac disease AND thyroid disorders

  • Potential connection among all three

The symptoms associated with hypothyroidism

  • Puffy face, constipation, fatigue
  • Muscle weakness, aches and pains
  • Irregular, delayed menstrual periods
  • Hair loss, thinning hair
  • Slower heartrate, hypothermia
  • Depression, memory problems

Resources:

‘Pregnancy Complicated with Pulmonary Edema Due to Hyperthyroidism’ in the Journal of the Chinese Medical Association

‘Sleep Apnea, Hypothyroidism and Pulmonary Edema’ in CHEST Journal Letters to the Editor

‘Thyroid and Fluid Retention’ on the Wilson’s Syndrome Site

‘Acute Pulmonary Edema as a First Manifestation of Hyperthyroidism in a Pregnant Woman’ in Revista Medica de Chile

‘Hypothyroidism and Non-Cardiogenic Pulmonary Edema: Are We Missing Something Here?’ in Endocrinology, Diabetes & Metabolism Case Reports

‘Celiac Disease and Autoimmune Thyroid Disease’ in Clinical Medicine & Research

‘Celiac Disease and Autoimmunity: Review and Controversies’ in Current Allergy and Asthma Reports

‘An Unusual Cause of Flash Pulmonary Oedema’ in BMJ Case Reports

‘Challenges in the Management of a Patient with Myxoedema Coma in Ghana: A Case Report’ in Ghana Medical Journal

‘Hyponatremia and the Thyroid: Causality or Association?’ in the Journal of Clinical Medicine

‘Interactions Between Thyroid Disorders and Kidney Disease’ in the Indian Journal of Endocrinology and Metabolism

Connect with Nadine:

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Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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Mental Health Disorders and Celiac Disease EP058


An estimated 50% of Americans are on some type of psychotropic drug. Half of the US population!

What is causing such widespread prevalence of mental health disorders? Prescription anti-depressants and sedatives don’t solve the underlying problem…  So how do we get to the bottom of this? 

The Gluten Free RN contends that there may be a connection between mental health and undiagnosed celiac disease. Today she explains how several disorders (anxiety, depression and paranoia, among others) have been linked to gluten, discussing how a leaky blood-brain barrier can lead to hypoxia, an inflammation of the brain.

Nadine walks us through the best research in mental health disorders and gluten sensitivity, sharing two landmark studies that emphasize the gut/brain connection and characterize celiac disease as primarily a neurological disorder. Nadine offers her insight around working with schizophrenic patients and the increasing number of children suffering from anxiety. Listen in to understand how gluten impacts your mental health, and learn how to eliminate brain fog, get off prescription meds, and enjoy a higher quality of life!

What’s Discussed: 

The connection between gluten and hypoxia

  • Leaky blood-brain barrier leads to inflammation of brain, decreased oxygen flow

The shocking statistics around Americans and psychotropic drugs

  • Estimated 50% of US population on psychotropic medication

The potential relationship between mental health disorders and undiagnosed celiac disease

  • High instance of depression, anxiety, fatigue and paranoia
  • May have difficulty sleeping, headaches or seizure disorder
  • Nearly all experience brain fog

The health consequences of undiagnosed celiac disease

  • Malabsorption of nutrients
  • Damaged immune system
  • Neurological symptoms
  • Hormonal imbalance
  • Neurotransmitter disruption

The findings of the landmark Cooke study in 1966

  • Ten of 16 patients with celiac disease had severe progressive neuropathy
  • All 16 had severe malabsorption

The conclusion of an editorial published in Neurology, Neurosurgery & Psychiatry

  • Celiac disease, NCGS is primarily neurological

How a gluten-free diet can resolve gastrointestinal and psychiatric symptoms

  • Celiac disease can manifest as depression, anxiety or psychosis
  • Research published in International Journal of Celiac Disease demonstrates gut/brain connection

Nadine’s experience with schizophrenia patients

  • Majority are gene positive for HLA-DQ2, HLA-DQ8

The increasing number of children diagnosed with anxiety disorder

  • May be caused by undiagnosed sensitivity to gluten

The concept of food as medicine

  • Body may read gluten as toxic, must remove from diet

Resources:

‘Gluten Sensitivity as a Neurological Illness’ in the Journal of Neurology, Neurosurgery & Psychiatry

‘Psychiatric Complications of Celiac Disease’ in the International Journal of Celiac Disease

‘Genetic Hypothesis of Idiopathic Schizophrenia: Its Exorphin Connection’ in Schizophrenia Bulletin

‘Markers of Gluten Sensitivity and Celiac Disease in Bipolar Disorder’ in Bipolar Disorders

‘Neurologic and Psychiatric Manifestations of Celiac Disease and Gluten Sensitivity’ in Psychiatric Quarterly

‘Neuropsychiatric Symptoms and Celiac Disease’ in Neuropsychiatric Disease and Treatment

Connect with Nadine:

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Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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My Health and Lessons for You EP057


Two and a half years ago, Nadine was inadvertently hit with gluten—three times in a row. In the past, it had taken about ten weeks for her symptoms to resolve after an accidental exposure, but this time they stuck around. It started with feeling cold. Then she began experiencing abdominal distention and pain.  Her dermatitis herpetiformis returned, she was plagued with sinus congestion, and she was gaining weight. Most concerning of all, she developed pulmonary edema, a condition caused by excess fluid in the lungs.

Today, the Gluten Free RN is getting real, revealing the health struggles she has been dealing with since 2015. She explains the circumstances that led to her accidental gluten exposure and recounts the ten scary nights she spent in a recliner, forced to sit up in order to breathe.

Nadine takes us along on her global search for the answers that began with a practitioner in Thailand and a tiny container of damp rash lotion, and ended with a diagnosis of myxedema from a naturopath here in the States. Nadine discusses how those three consecutive hits of gluten targeted her thyroid gland and how T3 is working to resolve her symptoms. Listen in and learn how the Gluten Free RN is reclaiming her Superwoman status and how you, too, can reach your full potential with good health and wellbeing!  

What’s Discussed: 

Maslow’s hierarchy of needs

  • Physiological, safety needs must be taken care of first
  • Difficult to achieve self-actualization with poor health

Nadine’s health struggle the past 30 months

  • Inadvertently hit with gluten three times in a row
  • Symptoms persisted past usual ten weeks
  • Sinus congestion, DH, pulmonary edema and weight gain

Nadine’s search for the underlying cause

  • Saw practitioner in Chiang Mai, damp rash lotion resolved symptoms
  • Naturopath in Oregon diagnosed myxedema (hypothyroidism)

How Nadine is reclaiming her health

  • Taking T3 to resolve symptoms

How a damaged thyroid gland impacted Nadine

  • Affected sleep, ability to do challenging physical activity

The importance of support in getting your health back

  • Need relationships to support choices

Resources:

Whole30

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism