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FAQ’s About Celiac Disease Answered EP047

How do I get over feeling sad about giving up the foods I love? Don’t celiac patients look a certain way? Can I eat wheat when I travel to Europe?

Today the Gluten Free RN is answering your frequently asked questions about celiac disease, clearing up misconceptions around the safety of wheat in Europe, the appearance of a celiac patient, and the percentage of the population that suffers from gluten sensitivity. She speaks to the challenges of getting your healthcare provider to do appropriate testing for celiac disease and the learning curve associated with changing your diet.

Nadine also explains the risks of embarking on a gluten challenge and the benefits of a super-good high fat diet. She discusses why a single breadcrumb can trigger an autoimmune response and how she uses tools like a Nima Sensor when she eats out. Listen in and learn why one negative test doesn’t rule you out for celiac disease, especially if you suffer from type 1 diabetes.

Having celiac disease doesn’t mean you have to live in a bubble. The Gluten Free RN wants to give you the answers you need to navigate the world—happy, healthy and gluten-free!

What’s Discussed: 

‘My sister has celiac disease, but I tested negative. I do have type 1 diabetes… What should I do?’

  • Get genetic test for HLA-DQ2, HLA-DQ8
  • Virtually every type 1 diabetic is gene carrier
  • One test doesn’t rule you out

 ‘Why do you use a Nima Sensor or EZ Gluten test strips? Doesn’t it give you a false sense of security?’

  • Have to trust others to prepare food when out
  • Not foolproof, but does give decent idea

 ‘A single breadcrumb or dusting of flour can trigger an autoimmune response? Really?’

 ‘I am overweight, I have dark hair, and I’m not of European descent. Don’t celiac patients look a certain way?’

  • Can’t see genes, celiac disease can affect any population worldwide
  • Overweight patients tend to be malnourished (unable to absorb nutrients)
  • Never rule out based on appearance, may not show physical symptoms

‘Why do you recommend a super-good high-fat diet?’

‘I’m already on a gluten-free diet. Do I need to go back to gluten to prove I have celiac disease?’

‘My cousin was just diagnosed with celiac disease, and she is very sad about giving up the food she grew up with. How can she get started on a gluten-free diet?’

  • Steep learning curve goes with process
  • Okay to feel sad, angry
  • Remember you will get better without surgery, medication
  • Try to see as an adventure

 ‘Why won’t my doctor order tests for celiac disease?’

  • Countries with for-profit healthcare tend to do poor job of testing, follow-up care
  • Fragmented, inaccurate education around celiac disease
  • Be own best advocate

 ‘Can I eat wheat in Europe?’

 ‘Is it true that celiac disease affects 1% of the population?’

  • 1% translates to 3M people
  • 3% is more accurate statistic
  • Won’t know for sure until conduct mass screening

Resources:

Gluten Free RN EP027: Type 1 Diabetes and Celiac Disease

Nima Sensor

EZ Gluten Test Strips

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

 

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What in the World Do I Eat? EP017


“Cheap food is an illusion. There is no such thing as cheap food. The real cost of the food is paid somewhere. And if it isn’t paid at the cash register, it’s charged to the environment or to the public purse in the form of subsidies. And it’s charged to your health.”

–Michael Pollan

Adopting a gluten-free lifestyle can be incredibly overwhelming, and many are resistant to the idea. Maybe you don’t want to give up the foods you love, or you don’t think you can do without pizza and beer. But the truth is that in order to heal, coping is your only option.

 Nadine is here to tell you that going gluten-free is not as difficult as you think. In fact, if it’s hard – you’re doing it wrong! She recommends a number of healthy gluten-free and Paleo-friendly food options, explains how your taste buds will change as you rid your body of addictive proteins, and discusses how to approach your grocer to request gluten-free alternatives. It’s time to stop eating for convenience and begin eating to enjoy high-quality food!

 What’s Discussed: 

Why going gluten-free can be challenging

  • Emotional attachment to food
  • Function as reward/comfort

 How to change your mindset to embrace the gluten-free lifestyle

  • Remember that there is plenty of other food to eat
  • Create a new ‘country’

 Why celiac patients should avoid eating meat from cattle fed on grass treated with glyphosate

  • Celiac patients are trying to heal increased permeability of the intestinal wall
  • Chemical in Roundup can cause ‘leaky gut’

 Nadine’s tips for realizing a healthy gluten-free diet

  • Don’t simply replace gluten-containing with gluten-free products
  • Focus on nutrient dense, whole foods high in good fat
  • Choose organic fruits and vegetables
  • Select 100% grass-fed, antibiotic free meat
  • Avoid dairy (proteins are molecularly similar to gluten)
  • Use almond, coconut or hemp milk and Kite Hill cheese/yogurt
  • Satisfy your sweet tooth with molasses, honey and occasionally maple syrup
  • Pick foods that have been processed very little or not at all
  • Explore new vegetables
  • Try bars when you are on the go (e.g.: Lärabar, EPIC, KIND)
  • Freeze fruits and vegetables to savor year round
  • Consider going Paleo (fruits, vegetables, nuts, seeds, meat, fish and eggs)

 The benefits of turning your lawn into a garden

  • ‘Growing food is like planting money’
  • Allows you to enjoy kale, tomatoes, beans, peas, peppers, squash, etc.

 How to tailgate on a gluten-free diet

  • Explore gluten-free alcohol options (i.e.: Ground Breaker, 2 Towns, honey mead)
  • Try gluten free snack foods like Kettle Brand or Jackson’s Honest chips and Jilz Crackers
  • Enjoy guacamole, salsa, hummus and pesto dips
  • Sample desserts like Hail Merry Miracle Tarts

 Nadine’s guidelines for selecting healthy foods

  • No more than five ingredients
  • Should be able to picture each ingredient

 Quality sources of fat

  • Bacon
  • Pumpkin seed and nut butters
  • Olive oil
  • Avocados
  • Eggs

 Resources Mentioned:

 Kite Hill

 Ground Breaker Brewing

 2 Towns Ciderhouse

 Kettle Brand Chips

 Jackson’s Honest Chips

 Jilz Crackers

 Hail Merry Miracle Tarts

 Lärabar

 EPIC Bar

 KIND Snacks

 Connect with Nadine: 

Instagram

Facebook

Contact via Email

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism