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Thoughts on Celiac Disease EP054

In 11 years as the Gluten Free RN, Nadine has done an incredible amount of research on celiac disease and delivered more than 2,000 lectures. No question she is frustrated to see misinformation continue to make its way onto celiac support sites and Facebook groups. How does the average person sift through all the material that’s out there—material that may be influenced by corporations and pharmaceutical companies with a vested interest in the way celiac disease is perceived—to get to the most accurate information?

Just in time for the holidays, the Gluten Free RN is sharing her wish list around the direction of celiac disease and non-celiac gluten sensitivity in the next ten years. She discusses the need for a global mass screening, explaining how celiac disease meets the World Health Organization’s criteria. She covers the reasons why pharmaceutical companies have no place in celiac research as well as the bad publicity the gluten-free community receives in the media.

Nadine speaks to the grievous lack of education about celiac disease among healthcare providers and shares her hope for a cultural shift to support people on a gluten-free diet, explaining the role nurses can play in ending the needless suffering. She talks about why a gluten-free diet is NOT dangerous and how to make the best food choices based on your lifestyle and current situation. Listen in and get empowered to accept responsibility for your health!

What’s Discussed: 

The need for a global mass screening

  • Celiac disease meets WHO criteria
  • 30-50% of population carries gene

Why pharmaceutical companies should not be involved in celiac research

  • Diet change resolves symptoms
  • Pharmaceutical involvement gives false hope for cure

The misinformation about celiac disease in the media

  • Misrepresentation in recent episode of Freakonomics Radio

The need to educate healthcare providers around celiac disease

Nadine’s call for support of people on a gluten-free diet

  • Don’t assume intentionally being difficult

The unique position of nurses to use their influence

  • Prevent needless suffering with understanding of celiac disease

Why you must accept responsibility for your own health

  • Take advantage of available resources
  • Find practitioners open to other modalities

How to avoid processed foods

  • Focus on raw, whole foods
  • Choose fresh fruits, vegetables
  • Don’t fall victim to convenience marketing
  • Use community, intuition to make decisions

Why a gluten-free diet is NOT dangerous

  • Nadine restored her health by eliminating grains
  • Unethical to suggest that celiac patient go off gluten-free diet

Resources:

Freakonomics Radio: The Demonization of Gluten

2004 NIH Consensus Statement on Celiac Disease

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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Alex Michaels from LPI on Vitamin C EP053

You know that vitamin C is good for you. It is necessary for the growth, development and repair of all your body tissues, and it plays a role in the healthy functioning of your immune system. But evidence shows that the RDA—90mg for men and 75mg for women—may be woefully inadequate. And if you are suffering from certain types of cancer or sepsis, vitamin C may be the key to recovery.

 The Gluten Free RN is joined by vitamin C researcher Alex Michaels from the Linus Pauling Institute at Oregon State University to discuss the latest developments in vitamin C, explaining how intravenous vitamin C works to kill certain cancer cells and reverses the organ failure associated with sepsis. He also covers the difference between vitamin C inadequacy and vitamin C deficiency and the debilitating symptoms of scurvy.

 Nadine and Alex speak to the best food sources of vitamin C and how it impacts other vitamins and minerals like iron and copper. Alex offers his advice around how much vitamin C you should get on a daily basis and explains why synthetic and natural vitamin C are identical. Learn about the LPI mission to determine the optimal ranges of micronutrients and phytochemicals you should be getting on a daily basis and how you can benefit from their research!

What’s Discussed:

Micronutrients vs. macronutrients

  • Micronutrients are vitamins, essential minerals needed in small amounts (milligrams or micrograms/day)
  • Macronutrients include fats, carbs and proteins (grams/day)
  • Phytochemicals come from plants, affect health but not essential nutrients

 The difference between intravenous and oral vitamin C

  • Intravenous bypasses GI system, high concentration in bloodstream (up to 100 grams)
  • Body can only absorb certain amount of oral vitamin C, inflammation may prevent absorption

 Vitamin C’s resurgence as a cancer therapy

  • High levels of intravenous vitamin C can covert oxygen to hydrogen peroxide
  • Hydrogen peroxide floods and kills some cancer cells (e.g.: pancreatic tumors)

 Vitamin C’s role in the treatment of sepsis

  • Reverses organ failure, decreases inflammation
  • May restore vitamin C to normal levels, protect from negative effects of iron

 The availability of intravenous vitamin C

  • Difficult to obtain, naturopaths usually have dedicated supplier
  • More readily available in Australia, New Zealand

 The fundamentals of scurvy

  • Defined as deficiency in vitamin C
  • Symptoms include bleeding gums, corkscrew hair growth, open wounds, malaise and low energy
  • Very rare in western world, would have to go without any fruits or vegetables for months
  • May have vitamin C inadequacy without any outward signs of problem

 The best food sources of vitamin C

  • Chili peppers
  • Tropical fruits (papayas, Kakadu plum, camu camu)

 Factors that are known to denigrate vitamin C

  • Heat, light and air
  • Mechanical disruption (i.e.: juicer)
  • Basic pH (anything above 7)
  • Enzymatic factors
  • Iron, copper

 How vitamin C impacts other vitamins and minerals

  • Enhances iron absorption, some must be careful of iron overload
  • Synthetic vitamin C may deplete copper concentration

 Alex’s take on the appropriate daily intake of vitamin C

  • 400 mg/day recommended
  • RDA much too low

Resources:

Linus Pauling Institute

Micronutrient Information Center

LPI on Facebook

LPI on Twitter

LPI on LinkedIn

LPI on Pinterest

Biochemical, Physiological, and Molecular Aspects of Human Nutrition by Martha H. Stipanuk PhD and Marie A. Caudill

Cancer and Vitamin C by Ewan Cameron and Linus Pauling

Dr. Paul Marik on NPR

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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Men and Celiac Disease EP035

When boys are hurt, we tell them to ‘rub some dirt on it’ and get back in the game. So it comes as no surprise that men have a tough time admitting weakness, especially to something as innocuous as a slice of bread. Perhaps this explains why celiac disease is considered a women’s issue, when in reality the male-to-female ratio is closer to 1:1.

Today the Gluten Free RN discusses the large numbers of men in the US who go undiagnosed or misdiagnosed, sharing several anecdotes of patients whose symptoms resolved on a gluten-free diet. She covers the particular social challenges for men with celiac disease, the laundry list of symptoms men may encounter, and the specifics of nutrition she recommends for gluten-sensitive patients.

Through it may be difficult to give up pizza and beer with the guys, it is worth the effort to go from sick and struggling to happy and healthy. Listen in and learn how to make going gluten-free simple and easy, even for men with limited culinary skills. Add bacon fat to your greens AND regain your abs with advice from the Gluten Free RN!

What’s Discussed:

The myth that men are less likely to suffer from celiac disease

  • 3 women diagnosed for every man
  • Actual ratio of men to women is 1:1
  • Huge numbers of undiagnosed celiac patients in US

The addictive nature of gluten

  • Morphine-like effect
  • Difficult to give up pizza, beer

Case study of man diagnosed with pancreatitis

  • Athletic entrepreneur in 40’s
  • Tested positive for celiac disease
  • Adopted gluten-free diet
  • Pancreatitis resolved
  • Fatigue and throat-clearing went away

Common symptoms of celiac disease in men

  • Fatigue
  • Thyroid issues
  • Anemia
  • Osteoporosis
  • Bowel issues
  • Difficulty swallowing
  • Chronic cough
  • GERD
  • Gastritis
  • Hemorrhoids
  • Gas
  • Bloating
  • Diarrhea
  • Constipation
  • Irritability
  • IBS
  • Urinary incontinence
  • IBH
  • Erectile dysfunction
  • Prostatitis
  • Prostate cancer
  • Facial ticks

Why men with osteoporosis and anemia together should assume they have celiac disease

  • Review labs for red blood cell count
  • Check for hemoglobin and hematocrit in right range

Nadine’s patient with a climbing PSA (lab indicator of prostate cancer)

  • Patient had difficulty sleeping, snoring issues
  • Had to eat bread or cereal before coffee to avoid abdominal pain
  • Suffered from chronic belching, brittle nails
  • Adopted variation of Paleo diet, symptoms resolved

How Nadine’s doctor had a change of heart around celiac disease

  • Nicknamed her ‘Gluten Insufficiency Nurse’
  • Called to request consultation
  • Endoscopy report indicated he had celiac disease
  • Symptoms resolved on gluten-free diet
  • No longer needed Cialis

The lack of celiac understanding exhibited by healthcare practitioners in the US

Doug’s story

  • PA diagnosed with atypical Crohn’s
  • Three trips to ER with GI bleeding
  • Endured surgery to resect bowels
  • Followed Nadine’s instructions for gluten-free diet
  • No longer has Crohn’s, rectal bleeding
  • Feels significantly better

How gluten causes excessive gas, explosive diarrhea and constipation

  • Gluten can trigger paralysis of intestines
  • Normal BM with diet change

Nadine’s advice around nutrition for gluten sensitive patients

  • Super-good, high fat diet
  • Paleo, whole food diet is ideal
  • Incorporate meat, fish, eggs, fruits, vegetables, nuts and seeds
  • Eliminate all grains, legumes and processed foods
  • Replace starches with potatoes, rice
  • Make choices based on preference and nutritional value
  • Select fewer processed, more fresh foods
  • Don’t just replace gluten-containing foods with gluten-free version (processed = nutrient deficient)

The benefits of bacon

  • Can use bacon fat to sauté greens
  • Body uses fat to heal, keep brain and nervous system healthy, prevent neurological disorders

Why men may be more resistant to diet change

Nadine’s advice for men on eating fresh, gluten-free food

  • Find a few easy-to-prepare recipes you like
  • Use a Crock-Pot
  • Incorporate fruits and vegetables
  • ‘If it’s hard, you’re doing it wrong’

Why subsidized ingredients are found in countless products

  • Government pays food manufactures to incorporate
  • Wheat, corn, soy and peanuts in surprising foodstuffs like catsup, tuna

The social challenges for men with celiac disease

  • Don’t want to be perceived as needy, weak
  • Others may be unkind if express special dietary needs
  • Especially difficult if others cooking for you, at special events (e.g.: wedding)

How switching from vegan or vegetarian to Paleo has affected Nadine’s male patients

  • Realize healthy weight
  • Able to gain muscle mass
  • Pain issues resolve
  • Improved mood

Resources:

The Whole 30: The 30-Day Guide to Total Health and Food Freedom  by Melissa and Dallas Hartwig

Connect with Nadine: 

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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Go Gluten Free for Good EP052

How do you successfully transition to and maintain a 100% gluten-free diet for the rest of your life? The prospect of eliminating wheat, barley and rye from your diet may seem daunting, but it is possible to go gluten free for good—for the good of your family and your health!

The Gluten Free RN explains the addictive nature of gluten and what to expect during the detox process as you begin your gluten-free journey. She offers valuable advice around how to choose the best quality food products while avoiding potential sources of cross-contamination.

Nadine discusses the need for supplements that will help you heal faster and more completely, speaking to the vitamin levels you should monitor along the way. Listen and learn her best tips for navigating the grocery store and maintaining a positive attitude throughout the process of going gluten-free—for GOOD!

What’s Discussed: 

The addictive nature of gluten

  • Gliadin, gluten proteins bind to opioid receptors
  • Wheat, barley and rye are cheap and readily available

 What to expect during the detox process

  • Different for everyone
  • Consider elimination diet to reboot system
  • May feel worse before feel better
  • Headaches, low energy and feeling hungry are common

 Why you shouldn’t cheat on a gluten-free diet

  • Same autoimmune response, even if symptom-free

 Potential sources of cross-contamination

  • Processed foods
  • Unwashed fresh fruits, vegetables
  • Bulk bins
  • Restaurants
  • Own home (i.e.: cutting boards, hands, pets, utensils, appliances, etc.)

 Nadine’s rules around choosing quality food products

  • Five ingredients or less
  • Picture every ingredient
  • Certified gluten-free
  • 100% grain-free

 Why there is no such thing as cheap food

  • Pay for quick-fixes to treat symptoms

 The necessity of additional vitamins, supplements

  • Helps heal faster, more completely
  • Use multivitamin, fish oil, pre- and probiotics
  • Check levels of D3, Zinc, B6 and B12
  • Liquid, chewables and capsules are easier to break down

 Nadine’s advice around navigating the grocery store

  • Plan menus in advance
  • Bring list of safe foods
  • Read labels carefully
  • Consider local co-ops, natural grocers and farmers markets

 Nadine’s best tips for going gluten-free

  • Concentrate on what you can eat
  • Accept more cooking, baking and meal planning
  • Find support group
  • Stay current on research, food labeling
  • Practice mindfulness, maintain positive attitude

Resources:

Whole30

Country Life Vitamins

Robb Wolf’s Paleo Food Matrix

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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Nutrient Dense Foods EP051

‘When in doubt, go without.’

The problem with processed food is that you simply can’t be sure that it is gluten-free. The risk of cross-contamination is high, and no one at the big corporations is accountable for your health. Not to mention the fact that processed foods have been irradiated to make them shelf-stable, effectively killing any probiotics. Even certified gluten-free products are often low in nutrients, high in calories—and expensive!

So what should you eat? The Gluten Free RN is on the case with her best suggestions around finding organic, whole foods that contain the healthy fat you need to heal. She explains her revised, gluten-free version of the food pyramid and discusses how these nutrient-dense foods support the healing process.

Nadine provides a list of the best nutrient-dense foods, offering the benefits of each. She also speaks to the most appropriate vitamins and supplements available to solve your nutrient deficiencies. You are what you eat, so make sure you are filling your tank with nutrient-dense foods that will improve your health and quality of life!

What’s Discussed: 

How nutrient dense foods support healing

  • Regenerate villi
  • Reduce inflammation of intestines
  • Heal immune system

Why Nadine recommends staying away from gluten-free junk foods

  • Low in nutrients, high in calories
  • Risk of cross-contamination (processed in facilities with wheat products)

The best sources of nutrient-dense foods

  • Whole foods, organic
  • Farmers market (few/no fertilizers)

Why shelf-stable products lack nutrients

  • Food dead from irradiation, no live probiotics

The risk of contamination in processed foods

  • No one accountable at big corporation
  • ‘When in doubt, go without’

Nadine’s revised food pyramid

  • Fruits and vegetables at base
  • Meat, fish and eggs
  • Nuts, seeds and berries

The importance of eating healthy fats

  • Heals intestines
  • Absorb fat-soluble vitamins (A, D, E and K)
  • Fix deficiencies
  • Healthy brain cells, nervous system
  • Balance hormones

Nadine’s recommendations around the best nutrient-dense foods

  • Sweet potatoes
  • Leafy greens (e.g.: kale, collard greens)
  • Berries
  • Coconuts
  • Black molasses
  • Avocados
  • Pumpkin, chia seeds
  • Meat and fish
  • High-quality eggs
  • Licorice root, peppermint tea
  • Cinnamon

Nadine’s vegetable challenge

  • Expand your vegetable repertoire
  • Try one new veggie per week

Nadine’s suggestions around additional vitamins, supplements

  • Good quality multivitamin
  • Fish oil (i.e.: Nordic Naturals)
  • Pre/probiotics
  • Vitamin D

How to avoid cross-contamination

  • Avoid bulk food bins
  • Wash produce

Resources:

Midway Farms on Facebook

Nordic Naturals

Country Life Vitamins

Bluebonnet Nutrition

Pure Encapsulations

National Nurses in Business Association

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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Managing the Holidays with Celiac Disease EP050

With the approach of the holidays, you may be nervous about navigating family and workplace gatherings—especially if you are newly diagnosed with celiac disease. How do you explain your dietary restrictions and keep yourself safe, eating well without getting ‘glutened’?

Today the Gluten Free RN shares her best advice around managing the holidays with celiac disease. She offers ten key tenants to help you enjoy the holiday season and mitigate stress, without feeling like you’re missing out. She shares some things you need to avoid, including unsafe situations, people who make you miserable, and cheating on your gluten-free diet! But she also discusses strategies you can implement to make the season bright, such as creating new traditions, getting creative in the kitchen, and finding your tribe—the people who will support you in your gluten-free journey.

Nadine also gives tips around where to go for gluten-free ingredients and holiday recipes, and how to develop a backup plan so you won’t go hungry if the food you encounter is questionable. You are likely to encounter well-intentioned friends and family members who have no idea how to feed you safely at holiday parties. Listen in and learn how to be clear about your dietary needs and take control of your health without isolating yourself from loved ones during this most wonderful time of the year!

What’s Discussed: 

#1 Don’t eat anything contaminated with wheat

  • Cannot eat center of pie, any part of turkey with bread stuffing

#2 Beware of good-intentioned people

  • Don’t eat anything questionable
  • Bring a snack with you just in case

#3 Be prepared to establish new traditions

  • Get creative in kitchen

#4 Don’t isolate yourself

  • Find support group, create your own

#5 Gather recipes early

#6 Order ingredients in advance

  • Consider organic, free range turkey

#7 Don’t invite people who make you miserable

  • Set clear boundaries (no complaints, ridicule)

#8 Eat before you go or take your own plate

  • ‘Desperate people make desperate decisions’
  • Take a dish to share, take your portion first

#9 Don’t be a victim

  • Be clear about your needs

#10 Find your people

  • Those who truly love you don’t want you to be sick

Resources:

 

Nima Sensor

EZ Gluten Test Strips

Paleo Magazine

Paleo Principles: The Science Behind the Paleo Template, Step-by-Step Guides, Meal Plans, and 200+ Healthy & Delicious Recipes for Real Life by Sarah Ballantyne

Sarah Ballantyne on Instagram

Glutenpro

EnteroLab

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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Lyme Infection and Celiac Disease EP049

If you’ve been following a strict gluten-free diet, but continue to suffer from lingering neurological symptoms, you may need to explore the possibility that you have Lyme disease. In fact, there are many parallels between celiac disease and Lyme, and the Gluten Free RN has called in an expert to discuss the similarities between the two disorders and why a gluten-free diet is part of the proper treatment for both.

Dr. Usha Honeyman, a chiropractic and naturopathic physician out of Corvallis, Oregon, joins Nadine to explain the fundamentals of Lyme disease. She shares her best advice around prevention and treatment, exploring why it can be difficult to get an accurate diagnosis.

Nadine and Usha also cover the inflammation of the gut that plagues both celiac and Lyme patients, the neurological component of Lyme disease, and the relationship between Lyme and illnesses like MS, Parkinson’s and ALS. Listen in to understand what can happen when Lyme goes untreated and how antibiotics coupled with a gluten-free diet may restore your health!

What’s Discussed: 

The fundamentals of Lyme disease

  • Most common insect-borne disease in US
  • Primarily carried by tics (disable immune system at bite site)
  • CDC estimates 300K new cases each year

How to prevent Lyme infection

How the political controversy in medicine has led to conflicting information around Lyme disease

The treatment for Lyme disease

  • Long-term antibiotics
  • T3 to raise body temperature, make white blood cells more efficient
  • Probiotics to support immune system

Why Dr. Honeyman advises Lyme patients to go gluten-free

  • Lyme causes inflammation of gut

The neurological component of Lyme disease

  • Spirochetes permeate blood-brain barrier
  • Cause brain fog, balance issues, sensory disorders, etc.

The alpha-gal reaction in Lyme patients in the Southeast US

The strange gait and lower-face movement in Lyme patients

  • Bell’s palsy is red flag for Lyme disease

The importance of having a Lyme-literate doctor

  • Skin scraping of rash for diagnosis available in research setting
  • ELISA and Western blot miss 80-90% of Lyme patients

The consequences of untreated Lyme disease

The three forms of Borrelia

  • Spirochete-form, intracellular and cystic

 Resources:

Dr. Honeyman’s Website

CDC Website

Picaridin

Natrapel

Insect Shield Clothing

Grain Brain: The Surprising Truth about Wheat, Carbs, and Sugar—Your Brain’s Silent Killers by David Perlmutter

Under Our Skin Film

International Lyme and Associated Diseases Society

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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Gluten Free Products EP048

The increasing number of gluten-free products on the market can be both a blessing and a curse. Yes, it gives us more options, but are those options truly safe and healthy?

Today the Gluten Free RN goes over the important questions to ask about the products you consume, explaining how the foods promoted by some gluten-free groups may be influenced by their corporate sponsors. She reminds us why we can’t simply trust the products labeled ‘gluten-free’ or ‘gluten removed,’ discussing the lack of oversight and standardization around classification and the cumulative effect of consuming a number of products that are just under the 20 ppm cutoff.

Nadine also shares a list of companies she trusts to consistently produce gluten-free products and offers suggestions around new food options we might explore. Listen in and learn to choose the nutrient-dense foods that will help your body heal!

What’s Discussed:

The importance of questioning the source of your information

  • Gluten-free groups take money from sponsors (corporations, pharmaceutical companies)

 Why Nadine avoids the ‘gluten removed’ label

 The questions to ask about gluten-free products

  • Is it manufactured in a designated facility?
  • From where do they source the ingredients?
  • Do they batch test those ingredients?

 The cumulative effect of eating many products just under 20 ppm

 Reliable companies that consistently produce truly gluten-free products

 The challenges faced by newly diagnosed celiac patients

  • Feeling different
  • Loss of convenience

 Why Nadine avoids gluten-free breads

 New food options to explore as a celiac patient

 Why Nadine recommends reevaluating the foods you consume

  • Ensure they are nutrient dense, don’t cause inflammation

 Why you can’t trust product labels

  • Corporations given six months to update after ingredients change
  • Not required to test products labeled gluten-free (no oversight, standardization)

 Nadine’s rules around choosing products

  • Five ingredients or less
  • Must be able to picture ingredients

Resources:

Canadian Celiac Association

The Gluten Dude on Facebook

Ground Breaker Brewing

The Gluten Intolerance Group of North America

Enjoy Life Foods

Glutino

Namaste Foods

Pamela’s Products

Jilz Crackers

Lundberg Family Farms

Mary’s Gone Crackers

Casabi Crackers & Flatbread

Jackson’s Honest

Kettle Brand

Nima Sensor

EZ Gluten Test Strips

Applegate

Beeler’s Pure Pork

Hempler’s

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

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FAQ’s About Celiac Disease Answered EP047

How do I get over feeling sad about giving up the foods I love? Don’t celiac patients look a certain way? Can I eat wheat when I travel to Europe?

Today the Gluten Free RN is answering your frequently asked questions about celiac disease, clearing up misconceptions around the safety of wheat in Europe, the appearance of a celiac patient, and the percentage of the population that suffers from gluten sensitivity. She speaks to the challenges of getting your healthcare provider to do appropriate testing for celiac disease and the learning curve associated with changing your diet.

Nadine also explains the risks of embarking on a gluten challenge and the benefits of a super-good high fat diet. She discusses why a single breadcrumb can trigger an autoimmune response and how she uses tools like a Nima Sensor when she eats out. Listen in and learn why one negative test doesn’t rule you out for celiac disease, especially if you suffer from type 1 diabetes.

Having celiac disease doesn’t mean you have to live in a bubble. The Gluten Free RN wants to give you the answers you need to navigate the world—happy, healthy and gluten-free!

What’s Discussed: 

‘My sister has celiac disease, but I tested negative. I do have type 1 diabetes… What should I do?’

  • Get genetic test for HLA-DQ2, HLA-DQ8
  • Virtually every type 1 diabetic is gene carrier
  • One test doesn’t rule you out

 ‘Why do you use a Nima Sensor or EZ Gluten test strips? Doesn’t it give you a false sense of security?’

  • Have to trust others to prepare food when out
  • Not foolproof, but does give decent idea

 ‘A single breadcrumb or dusting of flour can trigger an autoimmune response? Really?’

 ‘I am overweight, I have dark hair, and I’m not of European descent. Don’t celiac patients look a certain way?’

  • Can’t see genes, celiac disease can affect any population worldwide
  • Overweight patients tend to be malnourished (unable to absorb nutrients)
  • Never rule out based on appearance, may not show physical symptoms

‘Why do you recommend a super-good high-fat diet?’

‘I’m already on a gluten-free diet. Do I need to go back to gluten to prove I have celiac disease?’

‘My cousin was just diagnosed with celiac disease, and she is very sad about giving up the food she grew up with. How can she get started on a gluten-free diet?’

  • Steep learning curve goes with process
  • Okay to feel sad, angry
  • Remember you will get better without surgery, medication
  • Try to see as an adventure

 ‘Why won’t my doctor order tests for celiac disease?’

  • Countries with for-profit healthcare tend to do poor job of testing, follow-up care
  • Fragmented, inaccurate education around celiac disease
  • Be own best advocate

 ‘Can I eat wheat in Europe?’

 ‘Is it true that celiac disease affects 1% of the population?’

  • 1% translates to 3M people
  • 3% is more accurate statistic
  • Won’t know for sure until conduct mass screening

Resources:

Gluten Free RN EP027: Type 1 Diabetes and Celiac Disease

Nima Sensor

EZ Gluten Test Strips

Connect with Nadine:

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Melodies of the Danube Gluten-Free Cruise with Nadine

Books by Nadine:

Dough Nation: A Nurse’s Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism